Welcome......

Thank you for coming to our blog. We have decided to create this so we can share any news on our medical road. And you can have an opportunity to share any comments or advice. We welcome both.

Briefly....My husband Russ was born with a heart condition that is called 3rd degree AV block along with Mitral Valve prolapse. Back in 2009, he was diagnosed with Congestive Heart failure and received a pacemaker. The pacemaker helped the AV block. Now, back in August 2011, he had a relapse with the heart failure. We have been told his mitral valve was in need of repair or to be replaced. After heading off to Loma Linda Hospital, we find out that his heart is just so weak a valve replacement is not an option. We are in the waiting process to see when we can have the valve repaired and if that does not work the doctors will put in a LVAD (basically it is a mechanical pump) which will allow his heart to rest. This device will do the work his heart would normally do. This will be done while we wait for a new heart. So, what are we looking at then? Yes, a heart transplant.

We thank each and everyone for all you do.

About Us

My photo
6/13/2013 UPDATE: A year & a half post transplant and going strong. Russ is doing good and back to work 6 months now. January 2012: We have a new blog, the newest one will be about our experience with receiving a new heart, we hope you join our journey. ******** In addition to our new blog I have put together a couple of blog sites that you can breeze through. One is about my husbands journey to a new heart while living with an LVAD and me as the caregiver. The second, I am putting together to share recipes for a healthy heart. So I am sharing the low sodium recipes we have found and hope you will share yours.

Tuesday, January 24, 2012

Time for a new blog

Well, now that Russ has a new heart, we have come to the end of this road.  Now onto a new road......so I will no longer post on this but will be starting a new blog.  Hope you will follow me.  Thank you.

Monday, January 16, 2012

New heart

On friday Jan 13, we got the call we have been waiting for.  We were having a nice lunch with new friends and fellow transplant recepient when just as we sat down to eat the phone rings. It was time, there was a heart available and we needed to get to hospital asap.

We arrive at 1pm, Russ gets prepped and then we wait.  About 6 i think, he went into suregery.  At 7:37 the surgery starts, all is going good he is doing well, about midnight the new heart is in and working well but there is excessive bleeding which goes on for 4 hours. By about 4:30 Russ is back in his room and resting comfortably.   Most of Saturday, he was sediated but was awake and off breathing tube by about 4 pm.  Doing good and watching football.

Sunday morning he hit a speed bump.  He had extra fluid buildup and trouble breathing so he went back on breathing machine.  He spent all of sunday on it but they are hoping to remove it on Monday.

One step at a time, one day at a time.  Tomorrow is a new day with new challenges.  He is a fighter, we will look back at this with so many thoughts of how far he has come.  And what he has had to overcome.

Tuesday, January 10, 2012

Don't Quit

When things go wrong,
as they sometimes will,
when the road 
you're trudging seems all uphill,
when the funds are 
low and the debts
are high,
and you want to smile,
but you have to sigh,
when care is pressing
you down a bit, 
rest,
if you must,
but don't you quit

First Heart clinic visit of 2012

Well, today was a good visit. Russ is still doing good, all his LVAD numbers are good. He had his INR checked and today it went up from 1.3 to 1.9. Finally we are back to heading in the right direction with it.

The talk around the clinic is that we are getting close to getting a heart. I would love to know how they can tell. I was being curious, I asked the heart transplant coordinator to give me her estimate, when she thought it could be, she said this week. Now again, I ask how would they know.

We are both anxious and scared for the call. But, for now we continue to wait .........

Thank you
AuraLee