Happy New Year to all.
It has been a rough road since August for us but you all have been so great with your support, we want to thank each of you. We go into the new year still waiting patiently for a new heart, but we are so glad for modern technology and the LVAD device. We wish all of you a safe and awesome New Years eve and New Years day.
Thank you Russ & AuraLee
Welcome......
Thank you for coming to our blog. We have decided to create this so we can share any news on our medical road. And you can have an opportunity to share any comments or advice. We welcome both.
Briefly....My husband Russ was born with a heart condition that is called 3rd degree AV block along with Mitral Valve prolapse. Back in 2009, he was diagnosed with Congestive Heart failure and received a pacemaker. The pacemaker helped the AV block. Now, back in August 2011, he had a relapse with the heart failure. We have been told his mitral valve was in need of repair or to be replaced. After heading off to Loma Linda Hospital, we find out that his heart is just so weak a valve replacement is not an option. We are in the waiting process to see when we can have the valve repaired and if that does not work the doctors will put in a LVAD (basically it is a mechanical pump) which will allow his heart to rest. This device will do the work his heart would normally do. This will be done while we wait for a new heart. So, what are we looking at then? Yes, a heart transplant.
We thank each and everyone for all you do.
Briefly....My husband Russ was born with a heart condition that is called 3rd degree AV block along with Mitral Valve prolapse. Back in 2009, he was diagnosed with Congestive Heart failure and received a pacemaker. The pacemaker helped the AV block. Now, back in August 2011, he had a relapse with the heart failure. We have been told his mitral valve was in need of repair or to be replaced. After heading off to Loma Linda Hospital, we find out that his heart is just so weak a valve replacement is not an option. We are in the waiting process to see when we can have the valve repaired and if that does not work the doctors will put in a LVAD (basically it is a mechanical pump) which will allow his heart to rest. This device will do the work his heart would normally do. This will be done while we wait for a new heart. So, what are we looking at then? Yes, a heart transplant.
We thank each and everyone for all you do.
About Us
- Russ and AuraLee
- 6/13/2013 UPDATE: A year & a half post transplant and going strong. Russ is doing good and back to work 6 months now. January 2012: We have a new blog, the newest one will be about our experience with receiving a new heart, we hope you join our journey. ******** In addition to our new blog I have put together a couple of blog sites that you can breeze through. One is about my husbands journey to a new heart while living with an LVAD and me as the caregiver. The second, I am putting together to share recipes for a healthy heart. So I am sharing the low sodium recipes we have found and hope you will share yours.
Saturday, December 31, 2011
Friday, December 30, 2011
A lil scary moment
Well, we had an exciting thursday night. It was dressing change night and I was working it when we noticed that Russ` perc lead site was bleeding. Boy, we were both kinda freaking out a bit. Made a call to the hospital and was told to head in to ER. Turns out it was nothing serious. We went in today to see the LVAD coordinator, she said most likely it was a scab that came off. Both she and the surgeon said everything looked good.
We are thankful it wasnt serious.
Wednesday, December 21, 2011
We got the call....top of the list
Well, we heard from Loma Linda today....Russ has moved to status 1a. He is now at the top of the list for a heart transplant as of today. We are now on call. When the call comes which could be any time day or night we run to the hospital.
We are both looking forward to a new heart but are also kinda scared over the procedure. It all goes with the territory I guess.
Any and all prayers and thoughts are greatly appreciated.
Thanks
Russ & Auralee
We are both looking forward to a new heart but are also kinda scared over the procedure. It all goes with the territory I guess.
Any and all prayers and thoughts are greatly appreciated.
Thanks
Russ & Auralee
Tuesday, December 20, 2011
Today's heart clinic visit
We had a appointment today at the heart clinic. Russ is still doing good. Looks like everyone is in agreement to put him up to status 1a which is at the top of the transplant list. All that is needed is Dr. Razzouk's ok. Once he is at the top he will be there for 30 days. We will be on call 24hrs a day 7 days a week. They call we run.....but for now we wait for the dr's ok.
Wow...we just tonite we got call from the clinic and his INR went up from 1.6 to 2.3, we are thrilled.
Please continue the prayers but this time for a new heart in addition to continued healing.
Thank you all,
AuraLee
AuraLee
Monday, December 12, 2011
Well, we are now six weeks out of surgery and Russ is sitting here with me waiting for a close friend of our family to have open heart surgery himself. Now that I am sitting here I can honestly say I am nervous. Never knew how nerve racking it was to sit and wait. I guess I was to numb that day.
I am so glad that we can be here for support. Russ is planning to visit the unit he was in.
I am so glad that we can be here for support. Russ is planning to visit the unit he was in.
Wednesday, December 7, 2011
Today's visit to the heart clinic....
Well, we are at 5 1/2 weeks post surgery. Russ is doing good. Just had another visit to the heart clinic. And as usually, all is well. We have been struggling to get his INR up. (this is what measures his thickness of his blood). Last test was 1.4 and today it was 1.7, the doctors want him at 2.0. We are finally heading in the right direction at least. So no green veggies for him until further notice (And I just got him used to eating salads now, hahaha). Our next visit is on Dec 20th and it is looking more and more like they will be moving him up to status 1a (top section of the transplant list). They want to have him up there for Christmas and new years.
Well, until next time.....
Well, until next time.....
Saturday, December 3, 2011
Well, it has been about 5 weeks since Russ got the LVAD. We both are doing ok with it. He says he feels good and better than before the LVAD. One thing, we can't seem to raise his INR. Frustrating. Also, now he seems to be breathing rough again. I am hoping that this is not a sign of a new or reoccurring problem. Since we are getting closer to the 6 week mark we may be looking at being moved up to the 1a status and that means higher priority for a transplant. Well, not much more. More posts to come....
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