Welcome......

Thank you for coming to our blog. We have decided to create this so we can share any news on our medical road. And you can have an opportunity to share any comments or advice. We welcome both.

Briefly....My husband Russ was born with a heart condition that is called 3rd degree AV block along with Mitral Valve prolapse. Back in 2009, he was diagnosed with Congestive Heart failure and received a pacemaker. The pacemaker helped the AV block. Now, back in August 2011, he had a relapse with the heart failure. We have been told his mitral valve was in need of repair or to be replaced. After heading off to Loma Linda Hospital, we find out that his heart is just so weak a valve replacement is not an option. We are in the waiting process to see when we can have the valve repaired and if that does not work the doctors will put in a LVAD (basically it is a mechanical pump) which will allow his heart to rest. This device will do the work his heart would normally do. This will be done while we wait for a new heart. So, what are we looking at then? Yes, a heart transplant.

We thank each and everyone for all you do.

About Us

My photo
6/13/2013 UPDATE: A year & a half post transplant and going strong. Russ is doing good and back to work 6 months now. January 2012: We have a new blog, the newest one will be about our experience with receiving a new heart, we hope you join our journey. ******** In addition to our new blog I have put together a couple of blog sites that you can breeze through. One is about my husbands journey to a new heart while living with an LVAD and me as the caregiver. The second, I am putting together to share recipes for a healthy heart. So I am sharing the low sodium recipes we have found and hope you will share yours.

Tuesday, December 20, 2011

Today's heart clinic visit

We had a appointment today at the heart clinic. Russ is still doing good. Looks like everyone is in agreement to put him up to status 1a which is at the top of the transplant list. All that is needed is Dr. Razzouk's ok. Once he is at the top he will be there for 30 days. We will be on call 24hrs a day 7 days a week. They call we run.....but for now we wait for the dr's ok.
Wow...we just tonite we got call from the clinic and his INR went up from 1.6 to 2.3, we are thrilled.
Please continue the prayers but this time for a new heart in addition to continued healing.
Thank you all,
AuraLee
Posted by at

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)